Monday, June 18, 2018

Join the Club

[EDIT: Do you ever have those "oh crap, what did I do?!" moments? I just did this morning, when I looked and started reading some of the comments people had made to my post. I sincerely appreciate the expressions of concern, but I really need to emphasize that Clorinda and I are fine. The depression is there, and it's real, but we have learned and grown over 15 years and we are doing fine. I wrote this because some dear friends shared with me a very scary situation that they are facing as a young couple, and I wanted them to know that there are good things that come from facing hard things together. And I thought maybe someone else could use that encouragement, so I published it.]

I’m pretty sure there’s a Columbia House employee that thinks I have an unnatural obsession with Russell Crowe. And he may be right—Russell Crowe is a handsome and talented man. The truth is, when you get 8 DVDs for $10 and 3 of those that you select star Russell Crowe, there’s a very real possibility that you have a problem.

I was not an early adopter. As it happened, DVDs became THE THING while I was in law school. I still had my trusty VCR, along with a bunch of tapes ranging from Bear in the Big Blue House (teaching all about how to poop!) to Joseph and the Amazing Technicolor Dreamcoat (that Donny Osmond is almost as good as Russell Crowe) to Dead Poets Society (my favorite all-time movie. Or at least top 3). When I graduated, my parents decided that I needed to come to the age of enlightenment, and they bought me a DVD player as a graduation present.

I still have that DVD player. Maybe I need to graduate from something else so I can upgrade to Blu-Ray.

At some point I realized that it doesn’t do a lot of good to have a DVD player if you have no DVDs to play on it. About that time, Columbia House decided that I was worthy of an exclusive invitation to join their club. I could get 5 DVDs for just a dollar, and then 3 more for the cost of shipping. All in all, 8 DVDs for ten bucks. What a bargain—I think I will buy some.

I got all through the process, right up to the payment page, and then decided I didn’t want to have to explain to Clorinda why I was buying all these movies (or why I would have to buy 5 more in the next two years at regular club prices), so I exited from the page. Columbia House didn’t see it that way though—somewhere I must have clicked a final acceptance that constituted my enrollment in the club—I was a member! Woohoo!

Sometime later we sat down to watch one of my Russell Crowe movies. It was A Beautiful Mind, the true story (as interpreted by Hollywood) of John Nash, a mathematician that we learn [SPOILER ALERT] is plagued by mental illness. Nash doesn’t know of his illness (neither do the audience or the woman he marries) and he ends up with relationships with 3 people that don’t exist—one a college roommate, one a government operative that hires him to do cryptography, and the last a little girl.

Nash is tortured by his illness. He believes that he is part of a top-secret government project to decrypt messages hidden in magazine and newspaper articles, and deliver his analysis to the government operative that hired him. At one point in the movie, his wife discovers the thousands of clippings in his office and eventually comes to learn of the illness. Nash begins treatment, and for all intents and purposes it appears that his illness has been brought under control.

Until his wife discovers a secret room filled with more clippings. The illness is back, and she is absolutely despondent.

Towards the end of the movie, Nash asks a young student if he sees someone across the way. He jokes with the student that he has to make sure because he’s never sure who is real. The old college roommate, the little girl, and the government operative are his constant companions, but he’s learned to remind himself that they aren’t real.

When the movie ended, I felt a surge in my gut. It welled-up into my chest and my head and I started to cry. I sobbed, almost uncontrollably. Feelings that were buried deep inside me clawed and scratched their way to the surface and burst through my eyeballs.

I didn’t know that anyone else understood.

My tears were not for John Nash. My tears were for his wife. She understood me.

This is a hard piece to write. It is unlike anything I think I’ve written before, and I hope that you’ll be kind as you read this. Mental illness is unfairly stigmatized, misunderstood, and, unfortunately, a source of embarrassment. Clorinda has shared elements of her story from time to time. We don’t share it looking for sympathy or anything for ourselves—our lives are our lives and we are doing our very best to live them. Our hope when either of us share these experiences is that it can bring strength to someone.

Clorinda and I are both the oldest of 8 kids. Not the same 8 (it feels like I’ve used that joke before). It seemed to be some type of a sign to Clorinda, and she believed we would also have a large family. In 1997, we were blessed to have Marien, and then Clayton arrived 15 months later. It was about that time I decided I needed to go back to school, so that I could one day afford to buy DVDs from Columbia House. At the end of my first year of law school, Kathryn was born.

Law school was not easy for me, but it was harder for Clorinda. She had 3 small children at home, no income to provide for them, and a mostly absentee husband. I graduated early and took a job with Clark County, clerking for a judge in the district court. For Clorinda, that meant two things: one, I had a paycheck, and two, I had health insurance. We were really behind schedule on those 8 kids, so we needed to get cracking.

That was, of course, the fun part, so I was a willing participant. And it worked! By the end of spring we were expecting.

I was also enrolled in a bar preparation course that was every-night, Monday to Friday, from 6 to 10, after I’d finished a full day at work. The bar was weighing heavily on me. It was scheduled for the end of July, and it was my WHOLE LIFE. It seemed every waking moment was spent reviewing torts or commercial paper (OK, that one’s a lie—I never studied commercial paper) or contracts or community property. I poured over outlines and Bar-Bri books and listened to bar-review CDs in my car (I may not have had a DVD player, but come on, I was a little bit civilized).

Ten days before the bar exam, Clorinda miscarried. She was devastated. Crushed. Lost.

I was not even present. I like to tell myself that I must have at least said sorry, but it’s more likely that I said something like “we shouldn’t have rushed into having kids right after school.” I was tired and stressed and impatient and I FAILED. This was NOT a husband-of-the-year moment. It wasn’t even a husband-of-the-day moment. I’m lucky it wasn’t an ex-husband-of-the-day moment.

About six weeks later, she apparently had another miscarriage, although we weren't certain then, and still aren't sure now, how she could have even been pregnant again. It was a very difficult time, and it sent Clorinda into an emotional tailspin like I NEVER would have expected.

Since that time, she has had all kinds of depression. At the outset, I was of the get-yourself-out-of-bed-and-get-to-work mentality and was not very patient with Clorinda. THAT is not a good mix for a marriage. I’m going to avoid specifics, simply because my purpose is not to disparage Clorinda. Suffice it to say, there were hours and days and weeks and months and years of hell in our house as she struggled with the realities of depression and I watched my idea of a perfect marriage be stolen from right before my eyes. It was like living in the hell of the upside-down sinners.

Again, out of respect for my wife, I won’t go into details, but it took YEARS before we started to see some type of consistency in the benefits of the treatments. Years. Even now I don’t know when it’s going to decide to rear its ugly head again and thrust itself into the middle of our lives. I wish I could say that it was gone, but it’s not, and it likely never will be. It’s our own little girl, college roommate, and government operative, just off to the side as a constant reminder of OUR new normal.

Hell of the upside-down sinners indeed.

[I need to insert a note here. This whole thing probably sounds extraordinarily selfish, because it’s Clorinda, not me, that is fighting the illness. I know that—believe me I know that. This is a VERY difficult subject to write about. Clorinda’s own hell-of-the-upside-down-sinners is different from my own, and I cannot speak to her experience. And that is not my purpose here, other than to witness that her experience is real. Instead, my purpose is to share my experience as the spouse of someone suffering with a mental illness.

My wife is an angel, and this illness has done its best to steal her best-self from her. Through it all she constantly and consistently strives to be happy and good and true to who she is. I love Clorinda with my whole soul.]

*   *   *

My parents have been married for 47 years—that’s pretty remarkable in today’s society. For the last decade and a half, my dad has suffered various ailments as the result of his type II diabetes, and about 4 years ago we watched in some combination of awe and horror as he went from being able to walk to being almost completely paralyzed from the neck down in a period of only 3 ½ months. He underwent surgery on the discs in his neck—they came in from the front and from the back—and he was confined to his bed for months. With a great deal of effort, he relearned how to get up and take steps and ultimately walk—first with the aid of a walker and then just having things nearby to grab if necessary.

Through all of that my mother stood by his side, his ever-faithful companion, nursemaid, and cheer-leader. She cared for him, fed him, watched over him, and encouraged him in his recovery. I know there were lots of sleepless nights and thankless days for her. Finally, over the last year or so, things had gotten much better for them.

In December my folks came to Las Vegas to see Marien, who had just come home from her mission in North Carolina. When they arrived at the hotel, my dad was in a great deal of pain in his back. We got him a heating pad and he stayed at the hotel to rest. Late that night, my mom called to tell me that dad was worse and asked for me and John to come to the hotel.

Ultimately, he went to UMC where they determined that he’d had a heart-attack caused by MERSA attacking the valves in his heart. After 3 horrible weeks at the hospital, we were finally able to get him released to home health in Cedar City, where he had nurses come daily to administer meds and physical therapists come to try to help him out of bed. Through it all, his back still ached, and he was stuck flat on his back in bed.

Once again, my mother cared for him. She fed him, watched over him, cleaned him, and cheered him on. When there was seemingly no progress in his recovery, she took him to doctor appointments and advocated for him. When the infectious disease doctor discovered that the MERSA was still lodged in his spine (surprise—that’s where the pain was so terrible, but nobody wanted to check until the heart was cleared up), she was there to help him endure another round of meds.

He finally started to see progress, and was able to get out of bed, get to the restroom on his own, and get his own new-normal. Until last week, when he woke up in terrible pain again. The heart doctor is convinced the MERSA has returned to his back. And my mom is back to having no answers. But she’s faithful. She’s right by his side.

*   *   *

I got a text from Clayton today. He had been listening to a TED talk about a woman that had crashed her bike and broken some 30 bones in her body. She spent 6 months in an ICU and had hit rock bottom. The lessen, the quote that Clayton gravitated to, was that you never learn how strong you are until being strong is all you can do.

I’ve learned that. I’ve learned that about my wife (honestly, I don’t know how she manages. She’s come to terms with the illness and she just keeps moving forward). I’ve witnessed it—with awe—in my mother and my father.

But I have also learned how incredibly weak I am—how quick I am to lose sight of what’s important, to become impatient with the illness and lash out at my wife, only to be reminded (eventually) that the illness is not Clorinda, and Clorinda is not the illness. Then I have to humble myself, repent, remind myself that I need to, and can, do better. It’s a process. I can only hope that I can one day be the type of patient, caring spouse that my mother is to my dad.

There are a lot of times that I want to just exit from the page, just click the little X in the top-right corner and not get the 8 DVDs in the mail. But life is like Columbia House. Whether it’s depression or MERSA or broken bones or MS or cancer or infertility, or it’s having a spouse go through it, life has a way of saying congratulations—you’re in the club!